Colleen A said: August 19, 2009 4:39 pm PST
I just watched the you tube video which broke my heart, I have a niece who is 10 just diagnosed. Her 5 year old brother was diagnosed a year ago. They have and older brother and younger sister who are fine. I worry about them everyday. I am the caregiver/babysitter for them so their parents can get out once in awhile. I know exactly what you are going through and will fight with you and everyone else to find the cure. I would love to hear from you .